It was September 16, 2014 – I was at Mayo Clinic in Rochester, Minnesota seeing a movement specialist native to the nearby town of Sewickley. Out of the few neurological specialists I had seen to date this doctor was, without question, the most thorough in his examination. He started at the tip of my head …
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Apr 05
Update… we’ve been marching to Dystonia…
I had a telehealth visit with the movement specialist this afternoon. I find that I prefer telehealth as much as possible. They tend to stress me less than in-office appointments, the last couple of which have been during cold snaps in Pittsburgh. That means the heat is likely on in the Neurology office and I …
Jan 29
“10 Years Together”
I just realized I am a day late with this, but this is one anniversary it’s okay to be wrong about. And as long as we’re being honest, it’s only semi-accurate anyway. The noticable symptoms started in March, 2013 It was January 28, 2014, a Tuesday, when I received the first diagnosis of Parkinson’s Disease. …
Aug 17
The latest…
A quick report to tell you compared to my last appointment with Dr. B. in February, today’s appointment was much, MUCH better. First of all it was transfered to a tele-health visit at my insistence. Secondly, it was just Dr. B. No hot shot dude with cowboy boots to be seen or who would insist …
Feb 04
DBS – It’s up to me; not you.
I don’t mean to sound mean in the title, especially when everybody means well and we all want what is best for those whom we love. But what CAN be done to one’s body – specifically on an optional basis – should be up to that person to decide for him- or herself. Thursday was …
Dec 28
Christmastide Update 2022
Finally – some time off to update! As we round out the bend on 2022, I will say this has probably been my best year living with PD yet! The investment into chiropractic care is likely the reason – although it doesn’t do much for Parkinson’s itself, the decompression treatments and spinal adjustments have been …
Jun 17
Adding some complementary treatments
Look, I know there is no cure for Parkinson’s and I will never believe the random schmoe who says there is. Years ago when I was at the radio station on a regular basis, there was a program called “Daniel Chapter One” on which the husband and wife team always touted how the husband cured …
May 22
Yes, I fear this will happen to me one day…
A few years ago, I posted to Facebook about a time when I stopped at a nearby Sheetz to get gas before heading to the radio station. It was an extremely frigid day, and as this was before I was taking meds, the cold weather really affected my tremors. After I pumped gas I went …
Mar 28
April is Parkinson’s Awareness Month
April starts on Friday – and with that comes Parkinson’s Awareness Month. Yes, that means a new t-shirt is available. BUT it’s a “limited edition” run through September 16, 2022. Many of you were so kind last year to buy some merchandise and/or offer fiscal support to me as I was coming out of a, …
Feb 03
Medicine update – 2022-02-03
So that was quick! February 3 – two months and a day following my last in-person appointment. I had a video follow up with Ryan the PA. My support team of two humans, at least two cats and at least one dog were with me via zoom via computer as I conferenced in on the …
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